Disability Organizations

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National Organization for Albinism & Hypopigmentation (NOAH)

Offers information and support to people with albinism, parents of children with albinism, and teachers of students with albinism. Also includes a link to an online community where people can make connections with others who have albinism as well as learn about services available.

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National Organization of Nurses with Disabilities

Works to promote equity for people with disabilities and chronic health conditions in nursing through education and advocacy.

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ALS Association (ALSA)

Non-profit organization provides research programs, patient and community services, public education and advocacy to people living with amyotrophic lateral sclerosis (ALS) - often referred to as "Lou Gehrig's disease" - and their families.

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Alzheimer's Association

Organization that provides local and national services and supports for people with Alzheimer's and their families.
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American Academy of Physical Medicine & Rehabilitation

National medical society representing physicians who are specialists in the field of physical medicine and rehabilitation.
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American Amputee Foundation

Serves amputees, their families and care providers by gathering information on amputation including studies, product information, available services and self-help publications. Find a prosthetic professional near you.

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American Association of Adapted Sports Programs (AAASP)

AAASP envisions a society where sports for youth with physical disabilities or visual impairments are a common and vital part of America's education system. Its work is based on the principles of the adaptedSPORTS' model, which includes standardization in the principles and practices of coaching youth in varied physical disability groups; training and certification of coaches and other sport and education professionals; and widespread availability of adapted sports equipment.
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American Association of People with Disabilities

Cross-disability member organization dedicated to ensuring economic self-sufficiency and political empowerment for Americans with disabilities.
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American Association on Health & Disability (AAHD)

Supports health promotion and wellness initiatives for people with disabilities at the federal, state and local levels to reduce the incidence of secondary conditions in people with disabilities, as well as reduce health disparities between people with disabilities and the general population.
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American Association on Intellectual & Developmental Disabilities

Formerly known as the American Association of Mental Retardation (AAMR), the organization promotes progressive policies, research, effective practices and universal human rights for people with intellectual and developmental disabilities.
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American Bar Association - Commission on Mental & Physical Disability Law

Promotes the rule of law for persons with mental, physical and sensory disabilities and their full and equal participation in the legal profession.
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American Congress of Community Supports & Employment Services (ACCSES)

National, nonprofit organization of vocational rehabilitation service and community supports committed to maximizing employment opportunities and independent living for individuals with mental and physical disabilities.
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American Council of the Blind (ACB)

Advocates for Americans who are blind or visually impaired. Has more than 25,000 members organized in 70+ state and special-interest affiliates.
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American Foundation for the Blind

Works to ensure that Americans who are blind or visually impaired enjoy the same rights and opportunities as other citizens.
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American Medical Rehabilitation Providers Association (AMRPA)

Advocates for people with disabilities in their medical rehabilitation recovery. Represents rehabilitation hospitals, rehabilitation units in general hospitals, outpatient rehabilitation facilities, skilled nursing facilities and home health agencies.
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American Network of Community Options & Resources (ANCOR)

National network of providers offering quality supports to people with disabilities.
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American Parkinson Disease Association

Organization focuses on research, patient support, education and raising public awareness of the disease.
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American Speech-Language-Hearing Association

Committed to ensuring that all people with speech, language and hearing disorders receive services to help them communicate effectively. Serves as the professional, scientific and credentialing association for speech-language pathologists, audiologists and speech, language and hearing scientists in the United States and internationally.
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American Spinal Injury Association

Promotes excellence in all aspects of health care for individuals with spinal cord injury and educates health care professionals, patients and their families about spinal cord injury in order to increase the injured individual's independence.
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Amputee Coalition of America (ACA)

National nonprofit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences.
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Arthritis Foundation

The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
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Association for Persons in Supported Employment (APSE) - The Network on Employment

Membership organization whose mission is to improve and expand integrated employment opportunities, services and outcomes for persons with disabilities.
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Association for Service Disabled Veterans

Non-profit public benefit organization that works to create opportunities for service-disabled veterans to achieve and maintain their rehabilitation through enterprise development and managed employment.
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Association of Higher Education & Disability (AHEAD)

A professional association committed to the full involvement of people with disabilities in higher education. This site includes links to services, programs, events and resources for students and parents.

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Association of Maternal & Child Health Programs (AMCHP)

Information, articles, resources and conferences about the health and well being of women, children and youth, including those with special health care needs, and families.
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Association of Programs for Rural Independent Living (APRIL)

National organization of centers for independent living, their satellites and branch offices, statewide independent living councils, other organizations and individuals concerned with independent living issues of people with disabilities living in rural America.
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Association of University Centers on Disabilities (AUCD)

Membership organization that supports and promotes a national network of university-based interdisciplinary programs for individuals with developmental and other disabilities, their families, and communities.
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Autism Society of America (ASA)

Organization dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact.
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Autistic Self-Advocacy Network (ASAN)

A nonprofit organization run by and for people on the autism spectrum, whose leadership is made up entirely of self-advocates on the autism spectrum.  Includes links to autism reporting in the news as well as a list of chapters and affiliates and a resource library.

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Bazelon Center for Mental Health Law

Legislative issues regarding the rights of people with mental illnesses and developmental disabilities.
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Best Buddies International

Works to enhance the lives of people with intellectual disabilities (formerly referred to as mental retardation) by providing opportunities for one-to-one friendships and integrated employment.
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Blinded Veterans Association

Provides support and resources for Veterans who are blind or visually impaired and their families. Members include Veterans with service-connected disabilities, as well as those whose disabilities are not service-connected.
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Braille Institute

Provides information about blindness and visual impairments. Also includes links to medical information, tips on coping with sight loss, an online community and information specific to both children and adults.

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Brain Injury Association of America (BIAA)

Works to create a better future through brain injury prevention, research, education and advocacy.
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Brain Injury Network

National non-profit agency operated for and by survivors of acquired brain injury (abi), which includes traumatic brain injury (tbi), stroke, brain illness and brain tumor. Provides advocacy, information and referral, peer support, an Internet social community and a resource and link directory.
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Children Awaiting Parents

National, not-for-profit charitable organization that recruits foster and adoptive families for special needs children.

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Christopher & Dana Reeve Paralysis Foundation

Funds research for treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders. Works to improve the quality of life for people living with disabilities through grant programs, paralysis resource center and advocacy efforts.
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Community Living Exchange Collaborative

The Exchange is funded by the Centers for Medicare and Medicaid Services (CMS) and is a vital hub of information sharing, training and technical assistance for more than 180 recipients of Systems Change Grants for Community Living in all 50 states, two territories and the District of Columbia.
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Council for Exceptional Children (CEC)

Professional organization dedicated to improving educational outcomes for exceptional individuals, students with disabilities and/or the gifted students.
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Dandy-Walker Alliance

An all-inclusive organization comprised of individuals directly and indirectly affected by Dandy-Walker sharing a collective interest in educational, informational activities and supporting non-partisan research to increase public awareness of the congenital birth defect Dandy-Walker, which can cause hydrocephalus and other related disorders.
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DisABLEDperson.com

Non-profit public foundation that provides an online employment recruitment service for individuals and Veterans with disabilities. Also holds a virtual online job fair for college students transitioning from school to work.

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Disability Rights Legal Center

Provides legal information, direct representation and referrals for disability-related legal issues. Services are free to consumers, and training is available to businesses as well.
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Disabled American Veterans

The official voice of America's service-connected disabled Veterans, their families and survivors.

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Disabled Sports USA

Offers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, summer and winter competitions, fitness and special sports events.
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Easter Seals

Offers a variety of services, including child development centers, medical rehabilitation programs, job training, respite care, recreation and camping to help people with disabilities address life's challenges and achieve personal goals. Learn more about the Easter Seals' Military and Veterans Initiative.

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Epilepsy Foundation of America

National voluntary organization works to ensure that people with epilepsy are able to participate in all life experiences, and promotes research to find a cure.
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Hearing Loss Association of America

Provides people with hearing loss information, education, advocacy and support. Learn more about HLAA's partnership with the National Technical Institute for the Deaf at Rochester Institute of Technology to address the educational needs of Veterans of recent conflicts. Veterans of OIF and OEF are offered a complimentary one-year membership in HLAA.

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Hydrocephalus Association

Provides support, education and advocacy for individuals with Hydrocephalus, their families and professionals working with these individuals.
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Independent Living Institute

Offers resources for persons with extensive disabilities and develops consumer-driven policies for self-determination, self-respect and dignity.
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Inter-National Association of Business, Industry & Rehabilitation (I-NABIR)

An association of businesses, rehabilitation service providers, schools and universities, trade unions and associations who are placing people with disabilities into employment using a model of partnership with community business and employers.
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Invisible Disabilities Advocate

Strives to help friends and family better understand chronic illness and pain, as well as learn how to be a source of encouragement and support.
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Kansas Commission on Disability Concerns (KCDC)

KCDC is part of the National Association of Governors' Committees (NAGC) on People with Disabilities, which is a collective association of the Governors' Committees in the states and territories of the United States. The NAGC provides a national forum to facilitate a unified approach to important policy and program issues on disability.

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Kids as Self Advocates (KASA)

A national, grassroots network of youth with special health needs or disabilities (including physical, developmental or intellectual disabilities) and friends who speak on their own behalf. KASA provides information about a variety of issues including living with disabilities, health care, school and work.

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L'Arche USA

L'Arche Communities, founded in France in 1964, bring together people, some with developmental disabilities and some without, who choose to share their lives by living together in faith-based communities.
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LADD, Inc. (Living Arrangements for the Developmentally Disabled)

Works to support adults with developmental disabilities to lead a full life by providing community based services, person by person, that will maximize individual development, community inclusion, independence and their contribution to the society in which they live.
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Learning Disabilities Association of America (LDA)

Provides support to people with learning disabilities, their parents, teachers and other professionals.
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Life Rolls On Foundation

Nonprofit foundation dedicated to increasing awareness of spinal cord injuries (SCI) among youth through recreational, educational and developmental programs and raising money for research for the treatment and cure of paralysis caused by SCI. Activities include the They Will Surf Again events that take place every summer.

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Lyme Disease Association

An all-volunteer national non-profit organization dedicated to Lyme disease education, prevention, research and patient support. Find your local affiliate.

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Mobility International USA

Nonprofit organization promotes international educational exchange, leadership and disability rights and travel for persons with and without disabilities.
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Multiple Sclerosis Association of America (MSAA)

National nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis.
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Myasthenia Gravis Foundation of America

Only national volunteer health agency dedicated solely to the fight against myasthenia gravis, a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups.
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National Alliance on Mental Illness (NAMI)

A nonprofit, grassroots, self-help, support and advocacy organization of consumers, families and friends of people with severe mental illnesses.
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National Aphasia Association

A nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.

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National Association of Councils on Developmental Disabilities (NACDD)

Provides support and assistance to member Councils in order to promote a consumer and family centered system of services and supports for individuals with developmental disabilities.
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National Association of County Behavioral Health & Developmental Disability Directors

Organization comprised of county and other local authorities charged with governing mental health, addictions and developmental disability services in communities.
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National Association of Private Special Education Centers

Nonprofit association whose mission is to represent private special education centers and their leaders.
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National Association of State Directors of Developmental Disabilities Services

Nonprofit organization that works to improve and expand public services to people with intellectual and other developmental disabilities. Site includes a link to publications as well as member state agencies and resources.

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National Association of State Directors of Special Education (NASDSE)

Provides project information, publications, events, and resource links to improve educational services and outcomes for children and youth with disabilities and their families.
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National Association of State Mental Health Program Directors

Nonprofit organization dedicated to serving the needs of the Nation's public mental health system through policy development, information dissemination and technical assistance.
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National Association of the Deaf

Safeguards the accessibility and civil rights of Americans who are deaf and hard of hearing in the areas of education, employment, health care and telecommunications.
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National Black Deaf Advocates

The oldest and largest consumer organization of deaf and hard of hearing black deaf people in the United States.
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National Bullying Prevention Month - October 2010

This year is the fifth anniversary of PACER’s National Bullying Prevention Month that unites communities nationwide to raise awareness of bullying prevention. Traditionally held the first week in October, the event has been expanded to include activities, education and awareness building for the entire month.  Whether you are an educator, student, family, or individual who cares about students, here are the tools you need to address bullying in your school, recreational program or community organization. PACER Center is a national parent center serving all youth, with a special emphasis on children with disabilities.  Read Secretary Arne Duncan's remarks at the recent Bullying Prevention Summit.

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National Center for Learning Disabilities (NCLD)

Provides resources for parents and educators of youth, adolescents and adults with learning disabilities to ensure that they have opportunity to succeed in school, work and life.

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National Center on Disability & Access to Education

Monitors and promotes electronically-mediated distance education policies and practices that enhance the lives of people with disabilities and their families.
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National Coalition of Mental Health Consumer/Survivor Organizations

Organization works to ensure that mental health consumer/survivors have a major voice in the development and implementation of health care, mental health and social policies at the state and national levels, empowering people to recover and lead a full life in the community.
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National Consortium on Leadership & Disability for Youth (NCLD-Youth)

Youth-led resource, information and training center for youth and emerging leaders with developmental disabilities.
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National Consortium on Physical Education & Recreation for Individuals with Disabilities

Promotes research, professional preparation, service delivery and advocacy of physical education and recreation for individuals with disabilities.
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National Council on Independent Living

Provides national training and technical assistance to centers for independent living and advocates for national laws and policies affecting people with disabilities.
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National Disability Rights Network (NDRN)

Nonprofit membership organization for the federally-mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. NDRN serves a wide range of individuals with disabilities by guarding against abuse; advocating for basic rights; and ensuring accountability in health care, education, employment, housing and transportation.
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National Federation of the Blind (NFB)

Works to improves the lives of people who are blind through advocacy, education, research, a technology center and programs encouraging independence and self-confidence.

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National Minorities with Disabilities Coalition (NMDC)

Addresses disability issues relating to all communities of color.
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National Multiple Sclerosis (MS) Society

The MS Society and its nationwide network of chapters promote research and educate, advocate on critical issues and organize a wide range of programs, including support for the newly diagnosed and those living with MS.

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National Organization for Rare Diseases

A federation of voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them.
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National Organization on Disability (NOD)

Expands the participation and contribution of those with disabilities in all aspects of life.
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National Rehabilitation & Rediscovery Foundation, Inc. (NRRF)

A not-for profit community based organization dedicated to improving the quality of life for people with brain injuries and other neurological disabilities.
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National Rehabilitation Association

Member organization promotes ethical and excellent practice in rehabilitation.
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National Resource Center for Parents with Disabilities

Empowers parents and potential parents with disabilities by disseminating disability-appropriate information regarding parenting to parents, disability advocates and legal, medical, intervention and social services providers.
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National Spinal Cord Injury Association

Provides local and national training, information and resources for individuals with spinal cord injuries, their family members and professionals. Call toll-free helpline 1-800-962-9629.

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National Sports Center for the Disabled (NCSD)

NSCD is one of the largest outdoor therapeutic recreation agencies in the world. Each year, thousands of children and adults with disabilities take to the ski slopes, mountain trails and golf courses to learn more about sports - and themselves. With specially trained staff and its own adaptive equipment lab, the NSCD teaches a variety of winter and summer sports and activities to individuals with almost any physical, cognitive, emotional or behavioral diagnosis.
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National Youth Leadership Network (NYLN)

Works to promote youth leadership and education and teaches young people with disabilities to be advocates.
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PACER Center

The PACER (Parent Advocacy Coalition for Educational Rights) Center is a national center based in Minnesota that provides a wide variety of programs, materials and services to assist parents of children with disabilities to expand their children's opportunities in education, work and independent living.
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PEPNet

Postsecondary Education Programs Network provides resources and expertise that enhance educational opportunities for people who are deaf or hard of hearing--including those with co-occurring disabilities--and their families.
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PKS Kids

Promotes research, provides education, and helps raise awareness within the medical community in order to ensure early diagnoses of children with Pallister-Killian Syndrome (PKS). PKS also provides resources and support to families, therapists and caregivers of children with PKS.
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Paralysis Resource Center

Information, resources and referral services for people living with a spinal cord injury, mobility impairment or paralysis.
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Paralyzed Veterans of America (PVA)

Works to maximize the quality of life for people with spinal cord injury and disease. Advocates for health care, research, education, veterans' benefits and rights, accessibility and the removal of architectural barriers, sports programs and disability rights. Find a local chapter near you.

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Partners for Youth with Disabilities, Inc. (PYD)

Provides one-to-one and group mentoring programs where adult mentors with disabilities act as positive role models and provide support, understanding and guidance for youth as they strive to reach their personal, educational and career goals.

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Recording for the Blind & Dyslexic--Learning Through Listening

Provides digitally recorded audio textbooks for students with disabilities such as visual impairments or dyslexia.
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Rehabilitation Engineering Research Center on Wheelchair Transportation Safety

Works to improve transportation safety, usability and independence for people who remain seated in their wheelchairs when traveling in public, school and private motor vehicles.
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Scleroderma Foundation

The national organization for people with scleroderma (or systemic sclerosis) and their families and friends.

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Self Advocacy Leadership Network

Provides leadership training, information and resources for people with developmental disabilities and other self-advocates.
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Self Advocates Becoming Empowered

A national organization for self-advocates with developmental disabilities and their family members.
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