Intellectual & Developmental Disabilities

A Family Handbook on Future Planning

Information and resources related to planning for the care of adults with developmental disabilities as they grow into adulthood. This link opens a PDF document.
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Attention Deficit Hyperactivity Disorder (ADHD)

Information about ADHD from the National Institutes of Mental Health, including what ADHD is, its signs and symptoms, treatment and how to find mental health services in your area.

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Attention Deficit Hyperactivity Disorder (ADHD): Identifying & Treating - A Resource for School & Home

Publication from the U.S. Department of Education provides an overview of ADHD, and options for treatment. Link opens a PDF document.

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Attention-Deficit Hyperactivity Disorder (ADHD) Booklet

Publication from the National Institute of Mental Health (NIMH) about ADHD including topics such as symptoms, diagnosis, causes, disorders that sometimes accompany ADHD, treatment, family and the ADHD child, school, simple behavioral interventions, teenagers and adults with ADHD, support groups and organizations. This link opens a PDF document.
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Attention-Deficit Hyperactivity Disorder (ADHD) Information

Facts and information on ADHD with links to research, resources and free materials.

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Attention-Deficit Hyperactivity Disorder (ADHD): Can Adults Have ADHD?

Information from the National Institute of Mental Health about adult ADHD with links to research and resources.
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Attention-Deficit Hyperactivity Disorder (ADHD): Diagnosis of ADHD in Adults

Information for individuals seeking an evaluation for ADHD on what to expect from the clinician conducting the evaluation.
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Attention-Deficit/Hyperactivity Disorder (AD/HD)

Information about AD/HD, including its characteristics and how to diagnose AD/HD, treatment, accommodations at school, as well as tips for parents and teachers. More information is available from the Centers for Disease Control & Prevention (CDC).

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Autism & Pervasive Developmental Disorder Web Site

Resource for parents who suspect that their child may have autism.
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Autism Information Center

Portal through the Centers for Disease Control and Prevention (CDC) providing links to information, research and resources concerning autism.

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Autism National Committee

Advocacy organization dedicated to protecting and advancing the human rights and civil rights of all persons with autism.
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Autism Related News

News articles about the latest in autism research from the Center for Autism Research at The Children's Hospital of Philadelphia.

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Autism Spectrum Disorders (ASDs)

Information about ASDs, including characteristics, research underway to combat autism, laws that offer educational support for students with ASDs, and tips for parents and teachers. More information is available from the Centers for Disease Control & Prevention (CDC).

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Autism Spectrum Disorders - Primer for Parents & Educators

Information from the National Association of School Psychologists with basic facts about Autism Spectrum Disorders and effective intervention strategies. This link opens a PDF document.

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Autism Spectrum Disorders Frequently Asked Questions

Information from the Center for Autism Research at The Children's Hospital of Philadelphia provides answers to common questions related to autism for parents, educators, medical professionals and anyone in the community who may encounter individuals with autism spectrum disorders.

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Birth Defects

Links to information from the Centers for Disease Control and Prevention (CDC) on birth defects and their contribution to long-term disability.

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Center for Autism Research

Coordinates and supports research on autism spectrum disorders (ASD) at The Children's Hospital of Philadelphia and the University of Pennsylvania. Offers free of charge events designed to disseminate the latest in autism research and treatment.

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Centers for Disease Control & Prevention (CDC) Developmental Disabilities Information

Information from the CDC on developmental disabilities. Includes resources related to cerebral palsy, autism and intellectual disabilities.

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Centers for Disease Control & Prevention (CDC) Disability Page

Information and links to CDC's work with birth defects and developmental disabilities, prevention of disabling injuries and the health and well-being of individuals with disabilities.

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Centers for Disease Control & Prevention (CDC) Resources for People Affected by Developmental Disabilities

Provides information and resources for parents and educators regarding children with intellectual and other developmental disabilities, including cerebral palsy and autism spectrum disorders.

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Cerebral Palsy

Information about cerebral palsy, including what it is and its prevalence in the general population, its signs, treatment, early intervention systems in schools, and tips for parents and teachers. More information is available from the Centers for Disease Control & Prevention (CDC).

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Developmental Delay

Information about children's developmental milestones or the expected time-table for childrens' skills to emerge, and information about early intervention services for children experiencing developmental delays. More information is available from the Centers for Disease Control & Prevention (CDC).

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Dietary Intervention for Autism & Related Disorders

Page from the Parent to Parent New Hampshire Web site offers information on dietary intervention for autism and related disorders and provides help with dietary issues, finding appropriate foods locally, recipes and monthly group meetings.
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Direct Support Professionals Serving Individuals with Intellectual Disabilities

The Supply of Direct Support Professionals Serving Individuals with Intellectual Disabilities and Other Developmental Disabilities: Report to Congress
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Down Syndrome

Information about Down syndrome, including its characteristics and educational and employment related resources. More information is available from the Centers for Disease Control & Prevention (CDC).

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Early Identification of Developmental Delay & Disability

Information on the importance of early detection and screening of children for mental retardation and other developmental disabilities.
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Fragile X Syndrome

Fragile X syndrome is the leading hereditary cause of developmental disabilities in all populations. The absence of a functional fragile X gene shuts off production of a special protein in the brain needed for normal cognitive development.
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Interviews on the New American Association on Intellectual & Developmental Disabilities (AAIDD) Definition Manual on Intellectual Disability

Interviews with three experts on the 2010 AAIDD Manual and its educational and legal aspects. For more information read AAIDD's frequently asked questions on intellectual disability.

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Jacob's Bridge through Autism

A resource dedicated to helping families with children with Autism gain the knowledge to help themselves and bridge the gap between diagnosis and the next steps.
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Kids Health Pervasive Developmental Disorders & Autism Information

Provides information regarding pervasive developmental disorders, such as Autism, that ranges from emotions and behavior to nutrition and fitness.
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LADD, Inc. (Living Arrangements for the Developmentally Disabled)

Works to support adults with developmental disabilities to lead a full life by providing community based services, person by person, that will maximize individual development, community inclusion, independence and their contribution to the society in which they live.
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LD Resources Foundation

Provides information to help adults with learning disabilities (LD) overcome barriers and access knowledge. Includes resources on assistive technology, organizational skills, scholarships and a Survival Guide for adults with LD or Attention Deficit Disorder (ADD).

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Learning Disabilities (LD)

Information about learning disabilities in children, including how common LDs are in the general population, their characteristics and the IDEA's definition of LDs.

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Medical Home Services for Autism Spectrum Disorders

Report describing how the concepts and principles of the Medical Home can be used to promote the early identification of children with Autism Spectrum Disorders (ASD) and entry of those children into a full range of appropriate community based services.
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My Child Without Limits

Early intervention resource with a social networking element for families of young children ages 0 to 5 years with developmental delays or disabilities, and professionals looking for information that relates to their needs and interests.

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Myths & Truths About Down Syndrome

Fact sheet that responds to common misunderstandings about Down syndrome, including information about how often it occurs, average life span and interpersonal relationships among people living with Down syndrome.
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NIH Issues Research Plan on Fragile X Syndrome

The National Institutes of Health (NIH) has developed a research plan to advance the understanding of fragile X syndrome and its associated conditions. Fragile X syndrome causes intellectual and developmental disabilities and results from a mutation in a gene on the X chromosome.
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National Autism Association

Works to educate and empower families affected by autism and other neurological disorders, while advocating on behalf of those who cannot fight for their own rights.
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National Center on Birth Defects & Developmental Disabilities (NCBDDD)

Information on the NCBDDD which works to find causes of birth defects and developmental disabilities, implement prevention strategies and improve the health and wellness of people living with disabilities.

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National Directory of UCEDD Contacts

University Centers for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) work with people with disabilities, members of their families and state and local government agencies. Through training, technical assistance, research and information sharing, they build the capacity of communities to sustain all their citizens, including those with developmental and intellectual disabilities.
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National Institute on Child Health & Development (NICHD) Autism Site

Provides easy access to the most current information about NICHD research projects, publications, news releases and other activities related to autism and similar disorders.
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PKS Kids

Promotes research, provides education, and helps raise awareness within the medical community in order to ensure early diagnoses of children with Pallister-Killian Syndrome (PKS). PKS also provides resources and support to families, therapists and caregivers of children with PKS.
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Parent Training Complements Medication for Treating Behavioral Problems in Children with Pervasive Developmental Disorders

Treatment that includes medication plus a structured training program for parents reduces serious behavioral problems in children with autism and related conditions, according to a study funded by the National Institute of Mental Health (NIMH).

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Parents with Intellectual Disabilities

Information about services for parents who have intellectual, cognitive or developmental disabilities, or who have learning difficulties, from Through the Looking Glass, a national nonprofit organization.
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Rehabilitation Research & Training Center (RRTC) on Aging with Developmental Disabilities

Provides information on the latest research, model programs and policy issues pertaining to people with developmental disabilities as they age.
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Reinventing Quality 2010 - Doing Right by People in Challenging Times

This conference, to be held in Baltimore, Maryland from August 8-10, 2010, will provide information, new ideas and active discussions about person-centered planning, employment innovations, self advocacy and more for people with intellectual and developmental disabilities. Register for the conference online. A description of conference sessions can be downloaded in PDF format.

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Self Advocacy Leadership Network

Provides leadership training, information and resources for people with developmental disabilities and other self-advocates.
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Self Advocates Becoming Empowered

A national organization for self-advocates with developmental disabilities and their family members.
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Speech & Language Impairments

Information about speech and language impairments in children, which refer to problems in communication and related areas such as oral-motor function--sucking, swallowing, drinking, eating. Includes characteristics, frequency among the general school-age population and educational implications for children with these disabilities.

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Technical Assistance ALLIANCE for Parent Centers

Develops, assists and coordinates the over 100 Parent Training and Information Centers and Community Parent Resource Centers under the Individuals with Disabilities Education Act (IDEA). These centers provide training and information to parents of children ages birth to 26 years with all disabilities (emotional, learning, cognitive and physical), and to professionals who work with them.

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The Case for Inclusion--An Analysis of Medicaid for Americans with Intellectual & Developmental Disabilities

Report to help advocates and policymakers understand how their state performs in serving individuals with intellectual and developmental disabilities and their acute and long term care service needs. This link opens a PDF document.
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TheArcLink

Provides people with developmental disabilities the information and resources to exercise informed choice to live self-determined and fulfilling lives in their communities.
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U.S. Autism & Asperger Association

Works to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing educational and family support through conferences/seminars and published and electronic mediums.
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U.S. Department of Health & Human Services (HHS) Emergency Preparedness Special Initiatives Funding Opportunity

HHS' Administration on Developmental Disabilities (ADD) has announced the availability of Fiscal Year 2010 funds to award grants to set up Emergency Preparedness Special Initiatives for persons with developmental disabilities. These projects would help individuals with developmental disabilities and their families prepare for emergency situations. ADD administers the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act). Application deadline is August 9, 2010.

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Vanderbilt Kennedy Center

Center works to improve the quality of life of persons with disorders caused by the disruption of typical development. Includes the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities and the Treatment and Research Institute for Autism Spectrum Disorders.

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What Are Intellectual Disabilities?

Information about intellectual disabilities (formerly referred to as mental retardation), including causes, signs and tips for parents and teachers of children with intellectual disabilities. More information is available from the American Association on Intellectual & Developmental Disabilities and the President's Committee for People with Intellectual Disabilities.

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