Research & Statistics

Annual publication of statistics on people with disabilities and government programs that serve the population with disabilities. The Rehabilitation Research and Training Center on Disability Statistics and Demographics compiled the data, which include statistics from federal sources and surveys on disability prevalence, population size, including break-downs by state and disability type, employment and earnings, education, health and health care coverage, rehabilitation, and participation in benefit programs. The entire Compendium can be downloaded in PDF format.

In a report issued in the December 2008 Current Population Reports the U.S. Census Bureau reported that of the 291.1 million people in the 2005 population of the United States, 54.4 million, or 18.7 percent, reported some level of disability, and 35 million (12.0 percent of all people) reported a severe disability. This link opens a PDF document.

Research on independent living from AARP.

Information about research, grants and workshops related to long-term care and caregiving.

Materials from the U.S. Department of Health and Human Services Office of Disability, Aging and Long-Term Care Policy's first "Expert" meeting.

This National Institutes for Mental Health (NIMH) study identifies two kinds of early interventions designed to reduce symptoms of attention deficit-hyperactivity disorder (ADHD) in preschoolers that may be effective alternatives or additions to medication treatment.

Materials from the National Conference on Managed Care for Persons with Disabilities.

Assesses a variety of longitudinal models to examine the effect of different types of caregiver burden on outcomes important to policymakers, nursing home admissions, hospital use and stability of the family and formal care networks.

Presents an empirical analysis of the extent to which acute and long-term care cause disabled elderly persons to incur catastrophic costs.

The Center facilitates the sharing of information and expertise in rehabilitation research between the United States and other countries and maintains an international rehabilitation research database that helps users to find research in their field by country.

Information and links to CDC's work with birth defects and developmental disabilities, prevention of disabling injuries and the health and well-being of individuals with disabilities.

Project uses analyses of the 1984-1999 National Long-Term Care Survey and the Medicare Current Beneficiary Survey to understand the nature of recent declines in elderly disability rates and their implications for health care utilization.

Provides analysis of Medicaid expenditures for children receiving Supplemental Security Income (SSI) benefits.

Compares and contrasts alternative approaches to administering programs, financed under the Medicaid personal care services optional benefit, that make attendant services available to low-income elderly and disabled persons in need of help with daily living tasks.

Presents a conceptual framework to guide the development of measures of care coordination that would be both feasible to apply and meaningful in assessing the performance of Medicaid managed care organizations (MCOs) that enroll people with disabilities.

Compares costs of care for children with 11 selected chronic conditions with costs of care for children without any of these conditions and identifies whether selected demographic variables are associated with cost variation.

Results from a telephone survey conducted to assess consumer preferences for a cash option in Arkansas and describes how findings from the current four-state "Cash and Counseling" project can inform consumer information efforts and policymakers.

Select your state to find contact information for DDRCs. DDRCs are located within research universities and/or are affiliated with major medical centers, and represent the world's largest concentration of scientific expertise in the fields of intellectual and developmental disabilities.

Information for people with disabilities and health care providers on promoting and maintaining health standards.

Data on children with disabilities from the 1990 Survey of Income and Program Participation (SIPP), a nationally representative survey of the civilian non-institutionalized population.

Outcomes of an expert meeting to advise the U.S. Department of Health and Human Services on policy issues and available data related to several populations of persons with disabilities: working age adults, children, persons age 65 and older and special populations (e.g., persons with developmental disabilities, persons with mental illness).

Uses data from the 1989 National Health Interview Survey to estimate health insurance coverage of children and non-elderly adults with disabilities and their utilization of physician and hospital care as a function of health insurance status.

Investigates the effects of primary caregivers' employment status on the amount of help that disabled elders receive.

Analyzes the health care needs of elderly people with disabilities.

This entry of the Encyclopedia of Financial Gerontology contains information about the Americans with Disabilities Act and nine major federal programs targeted on disability which serve sizable proportions of the non-elderly population aged 50 and over.

Focuses on functional transitions at advanced ages and the impact of long-term care services on these transitions.

Series of articles and findings from the National Long-Term Care Channeling Demonstration.

Findings of an analysis of expansions in the income threshold for the Supplemental Security Income (SSI) work incentive program and analysis of the employment, insurance and program participation status of people with disabilities.

Results of a focus group of academicians, researchers and service providers on the topic of the implications of the movement toward managed health care for people with physical and mental disabilities.