Children & Youth

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Video on Staying Healthy for Youth in Transition

This video explains to young people with medical conditions or disabilities the importance of taking care of their health as they transition into adulthood and take responsibility for themselves. Includes information on taking medicines, talking with doctors, carrying an emergency health information card, keeping a health care notebook, paying for health care, going to college and planning for accommodations, eating the right foods, exercising and more.

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2010 Southwest Conference on Disability

This conference will take place October 6-8, 2010 in Albuquerque, NM. Topics will cover the future of the Americans with Disabilities Act (ADA), how technology is improving the lives of people with disabilities, how to improve the lives of children with disabilities, as well as a special celebration of the 2010 Disability and The Arts Program. Register online or download the printable registration form.

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About Bullying

Resource provides parents and caregivers with information about bullying and methods for communicating with children about the climate of fear created by bullying.
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Abuse of Children with Cognitive, Intellectual & Developmental Disabilities

Information on the abuse and neglect of children with cognitive, intellectual and developmental disabilities and how to help prevent and report abuse. Document is in Word format.
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Administration for Children & Families Home Page

Provides family assistance (welfare), child support, child care, Head Start, child welfare, and other programs relating to children and families.
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Administration for Children & Families Office of Child Support Enforcement

Assures that assistance in obtaining support (both financial and medical) is available to children through locating parents, establishing paternity and support obligations and enforcing those obligations.
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Adopting Children with Developmental Disabilities

Information for families who may be considering adopting children with developmental disabilities such as Down syndrome, cerebral palsy or autism.
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Agency for Healthcare Research & Quality: Child & Adolescent Health

Links to health care quality, costs, outcomes, and patient safety reports, research, conferences and children's health care programs.
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Alzheimer's Disease & People with Mental Retardation

Fact sheet provides an overview of Alzheimer's and how people with mental retardation (intellectual disabilities) are impacted by the disease. Document is in Word format.
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Answers4Families: Children's Mental Health

Information and support to families and professionals in Nebraska who are interested in children's mental health issues.

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Answers4Families: Families with Special Needs Children

Resource for families with children, youth and adults with special needs, including disabilities and chronic illnesses of all types. Offers links to a wide variety of information to help connect to and learn from other families.

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Association of Maternal & Child Health Programs (AMCHP)

Information, articles, resources and conferences about the health and well being of women, children and youth, including those with special health care needs, and families.
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Attention-Deficit Hyperactivity Disorder (ADHD) Information

Facts and information on ADHD with links to research, resources and free materials.

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Autism & Pervasive Developmental Disorder Web Site

Resource for parents who suspect that their child may have Autism.
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Autism National Committee

Advocacy organization providing updates on politics and judicial decisions, commentaries, information about developmental and relationship-based approaches to early intervention and education, issues affecting community living, home-owning and consumer choice.
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Autism Resource Network

Information on the key issues associated with autism spectrum disorders.
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Autism Society of America

Provides individuals within the autism spectrum, their families and professionals with information, resources, programs and research about autism.
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Autism Spectrum Disorders - Primer for Parents & Educators

Information from the National Association of School Psychologists with basic facts about Autism Spectrum Disorders and effective intervention strategies. This link opens a PDF document.

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Autism Spectrum Disorders Resources

Information on autism and autism spectrum disorders from the Maternal and Child Health Library at Georgetown University. Includes resources for professionals and for family members, as well as on specific aspects of autism spectrum disorders such as diagnosis, early intervention and current research.

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Benefits for Children with Disabilities

Booklet which illustrates the kinds of Social Security and Supplemental Security Income (SSI) and health benefits for a child with a disability and explains the evaluation of disability claims for children.
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Bipolar Disorder in Children & Teens: A Parent's Guide

Publication from the National Institute of Mental Health answers common questions about children and teens with bipolar disorder, including how it is diagnosed and treated. This link opens a PDF document.

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Causes & Prevention of Mental Retardation

Fact sheet provides an overview of mental retardation, including causes and prevention. Document is in Word format.
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Centers for Disease Control & Prevention (CDC) Resources for People Affected by Developmental Disabilities

Provides information and resources for parents and educators regarding children with intellectual and other developmental disabilities, including cerebral palsy and autism spectrum disorders.

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Centers for Disease Control & Prevention Kids Page

Designed to help children understand and accept disability.

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Child Health Guide to Preventive Care

Helpful resources to child and adolescent health topics.

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Children with Diabetes

Information about juvenile diabetes and support for parents and children with diabetes.
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Children with Disabilities & the State Children's Health Insurance Program

Information regarding low-income uninsured children with disabilities to assist state decision makers in their implementation of Children's Health Insurance Program (CHIP) plans.

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Children's Mental Health: A National Action Agenda

Information on the 2001 National Action Agenda for Children's Mental Health which outlines strategies to improve the services for children and adolescents with mental health problems.
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Children, Adolescents & Families Mental Health Information

Information on the Child, Adolescent and Family Branch of the Federal Center for Mental Health Services, which promotes and ensures that the mental health needs of children and their families are met within the context of community-based systems of care.
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Department of Education Office of Special Education & Rehabilitative Services (OSERS)

Provides a wide array of support to students, parents, school districts and states in three main areas: special education, vocational rehabilitation and research in order to improve results and outcomes for people with disabilities (including physical, intellectual and developmental disabilities) of all ages.

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Developmental Delay

Information about children's developmental milestones or the expected time-table for childrens' skills to emerge, and information about early intervention services for children experiencing developmental delays. More information is available from the Centers for Disease Control & Prevention (CDC).

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Developmental Screening & Assessment Instruments

The National Early Childhood Technical Assistance Center (NECTAC) has compiled this list of tools for state administrators and local providers of early intervention and preschool programs for the screening and assessment of childrens' social and emotional development. This link opens a PDF document.

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Developmental Screening for Children

Learn ways to identify children who should receive more intensive assessment or diagnosis for potential developmental delays or intellectual disabilities.

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Dietary Intervention for Autism & Related Disorders

Offers information on dietary intervention for autism and related disorders and provides help with dietary issues, finding appropriate foods locally, recipes and monthly group meetings.
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Disabilities & Chronic Illness in Girls

Provides reliable, current health information for girls between the ages of 10 and 16 about disabilities and illnesses.

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Disability & Health Home Page

Information for people with disabilities and health care providers on promoting and maintaining health standards.

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Disability Among Children

Data on children with disabilities from the 1990 Survey of Income and Program Participation (SIPP), a nationally representative survey of the civilian non-institutionalized population.

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Early & Periodic Screening & Diagnostic Treatment Benefit (EPSDT)

Information about benefits which provide for comprehensive and preventive health screening for individuals under the age of 21, including those with intellectual and developmental disabilities.
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Early & Periodic Screening, Diagnosis & Treatment (EPSDT) Program Information

The EPSDT program is designed to meet the physical, mental health and developmental needs of children living in low-income families.
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Early Childhood Comprehensive Systems

A report highlighting the efforts of 10 states in providing state-to-local support for developing early childhood systems.
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Early Identification of Developmental Delay & Disability

Information on the importance of early detection and screening of children for mental retardation and other developmental disabilities.
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Family Guide to Systems of Care for Children with Mental Health Needs

Bilingual guide to finding services and working with providers in local children's systems of care.
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Family Village

Provides information and resources for issues faced by children and youth with disabilities (including physical, intellectual and developmental disabilities) and their families.

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Family Voices

Information on obtaining health services for children with special health needs.
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Financial Aid for Health Professions Students & Practitioners

Loans, scholarships and loan re-payment resources for students and practitioners involved in health professions.
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Financial Assistance Program for Children's Adaptive Equipment & Therapy Sessions

Provides financial assistance through Kyra's Krusade for adaptive equipment, physical and occupational therapy or hippotherapy sessions not covered by insurance.

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First Signs

A national non-profit organization dedicated to educating parents and professionals about the early warning signs of autism and related disorders.
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Healthy & Ready to Work

Information on a federally-funded initiative for youth with special health care needs which helps them transition from pediatric to adult health care and to work and independence.
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Hearing Loss in Children

Fact sheet on hearing loss with answers to frequently asked questions.

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How Families Can Help Children Cope with Fear & Anxiety

Publication offers parents and other caregivers advice on helping children cope with the anxiety that violence, death and disasters can cause.
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Indiana Resource Center for Autism

Conducts outreach training and consultations, engages in research and develops and disseminates information focused on building the capacity of local communities, organizations, agencies and families to support children and adults with Autism.
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Information & Resources for Girls & Young Women with Disabilities

Includes information on becoming independent, rehabilitation therapies, as well as stories shared by young people living with a disability.
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Insure Kids Now!

Information on a national campaign to link the nation's 10 million uninsured children (from birth to age 18) to free and low-cost health insurance.
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Jacob's Bridge through Autism

A resource dedicated to helping families with children with Autism gain the knowledge to help themselves and bridge the gap between diagnosis and the next steps.
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John Tracy Clinic

Education center that offers families of infants and preschool children with hearing losses free, parent-centered services worldwide. The clinic provides free hearing tests for children from birth up to age five who live in Southern California.
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Kid Quest Page on Disability & Health

Encourages kids to think about people with disabilities and some of the issues related to participation in daily activities, health and accessibility.
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Kids Health Pervasive Developmental Disorders & Autism Information

Provides information regarding pervasive developmental disorders, such as Autism, that ranges from emotions and behavior to nutrition and fitness.
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Kids as Self Advocates (KASA)

A national, grassroots network of youth with special health needs or disabilities (including physical, developmental or intellectual disabilities) and friends who speak on their own behalf. KASA provides information about a variety of issues including living with disabilities, health care, school and work.

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Lutheran Services of America (LSA)

LSA's nearly 300 health and human service member organizations provide services ranging from health care to disaster response, from services for children and families to care for the elderly.
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Maternal & Child Health Bureau

Contains information on various programs for families and children administered by Health and Human Services, including a block grant program to help families care for children with special health needs.
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Mental Retardation Information

Information on intellectual disabilities (formerly referred to as mental retardation) with answers to frequently asked questions and links to research and resources.

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National Center of Medical Home Initiatives for Children with Special Needs

Provides support to physicians, families and other medical and non-medical providers who care for children with special needs so that they have access to a medical home.

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National Center on Birth Defects & Developmental Disabilities (NCBDDD)

Information on the NCBDDD which works to find causes of birth defects and developmental disabilities, implement prevention strategies and improve the health and wellness of people living with disabilities.

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National Directory of UCEDD Contacts

Click on your state to find contact information for University Centers for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) Centers. These centers work with people with disabilities, members of their families and state and local government agencies providing training, technical assistance, research and information sharing.
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National Institute of Neurological Disorders & Stroke (NINDS) Learning Disabilities Information Page

Information and resources for learning disabilities, disorders that affect the ability to understand or use spoken or written language, do mathematical calculations, coordinate movements or direct attention.
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National Institute on Child Health & Development (NICHD) Autism Site

Provides easy access to the most current information about NICHD research projects, publications, news releases and other activities related to autism and similar disorders.
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National Institute on Drug Abuse: Information for Parents & Teachers

Information for parents and teachers about the health effects and consequences of drug abuse and addiction.
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National Institutes of Health (NIH) Intellectual & Developmental Disabilities (IDD) Branch

Supports research and training aimed at preventing intellectual and related developmental disabilities. Provides contact information for staff as well as links to more detailed information about projects and program areas.

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New Research to Help Youth with Mental Disorders Transition to Adulthood

Several new grants will examine transition issues and work toward developing better ways to help young people with mental disorders successfully enter adulthood.
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Opening Doors: Technology & Communication Options for Children with Hearing Loss

Publication provides information and resources for parents of children with hearing loss.
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Research Efforts on Developmental Screening

Research on screening for developmental and intellectual disabilities (formerly referred to as mental retardation) and other health conditions in children.

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Services for Children with Special Health Needs

Includes a section of the web page with information and resources for children with special health care needs.
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Services for Families

Information on services, programs and government benefits available to families, including Temporary Assistance for Needy Families (TANF) and Head Start.

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Specialized Training of Military Parents (STOMP)

Information and workshops about parent rights and responsibilities regarding special education services for military children in the United States and overseas.
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State Children's Health Insurance Program (SCHIP)

Information on the program for low cost health insurance for families & children.
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State Disability Resources

Organizations and agencies within your state that address disability-related issues, including youth with intellectual and developmental disabilities.
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State of the Science in Autism

Report to the National Institutes of Health on Autism research, including assessing the state of the science in autism, identifying gaps in knowledge, and making recommendations to the NIH regarding promising areas for future research.
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StrengthofUs Online Resource for Young Adults

An online social community for teens and young adults to learn about mental health conditions, services and supports and handling the unique challenges and opportunities in transition-age years.  Begin your trek into adulthood by checking out information about employment, housing, college life, money matters and much more.

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Supportive Health Service Needs of Children with Disabilities

Focuses on supportive services, a subset of health-related services that are used almost exclusively by children with disabilities, in order to sharpen the focus on the differential need of children with disabilities.

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Technical Assistance ALLIANCE for Parent Centers

Develops, assists and coordinates the over 100 Parent Training and Information Centers and Community Parent Resource Centers under the Individuals with Disabilities Education Act (IDEA). These centers provide training and information to parents of children ages birth to 26 years with all disabilities (emotional, learning, cognitive and physical), and to professionals who work with them.

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Teen Mental Health Problems: What Are The Warning Signs

Publication offers information on the warning signs of mental health problems in teens.
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Through the Looking Glass (TLG): Serving Families with Disabilities

A nationally recognized center that has pioneered research, training and services for families in which a child, parent or grandparent has a disability (including physical, developmental or intellectual disabilities) or medical issue.

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Transition Information

Resources for issues faced by youth with disabilities (including physical, developmental and intellectual disabilities) as they transition from school to work. Includes links to information on health-related issues.

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